The Flagyl clearly wasn't working and the symptoms were getting worse, so I had a CT scan on Tuesday. This showed very little change in the size of the original tumor, but some smearing in the peritoneal suggestive of secondaries. This seems to be the most likely cause of the symptoms. It is low volume disease, but obviously affecting gut motility.
I saw the oncologist this evening and we decided to try and alleviate the symptoms with dexamethasone and Maxalon, but to start 5-FU + Folinic acid + Irenotecan chemotherapy next week. I am waiting for a call from the radiologist to have a Hickman line inserted and as soon as that is done I hope to start the chemotherapy.
This has been a trying time of waiting for me and my wife. It was clear that something was wrong and it is a relief to finally have a decision. It is like being in opposition in Parliament. Without the responsibility of power you can come up with ever more fanciful explanations for what is going on. But when you are the ruling party you have to be realistic and get it right. That's why you have to have a doctor to look after you and not try and treat yourself.