I have just completed the third course of chemo and am waiting for side effects. In order to pre-empt these I have made some changes. Most importantly, I have reduced the dose of dexamethasone from 8, 6, 6, 2, 2 on successive days to 4, 4, 2, 2. The dex was there as an anti-emetic, but I was not sick and the side effects were fluid retention, constipation, hypertension, 5 pounds weight gain, psychiatric symptoms (high as a kite), and sleeplessness. Of these only sleeplessness has remained with the lower dose, but I have been able to rise at 5 am and get on with some work.
I have also purchased some lightweight linen gloves to wear inside to avoid the cold-induced pins and needles caused by the oxaliplatin. I am even typing with them on right now. It's a little bit clumsier and I have to make more use of spellcheck.
I am also conscious this time of acid reflux and have recourse to the Gaviscon. That is perhaps because I have switched back to ranitidine from lanzoperazole. I was worried that a PPI would leave me more at risk from c difficile. I will try switching back while I am on the steroids.
I am having a lie down after meals to try an catch up on sleep. Even 20 minutes seems to help
I find it difficult to read, which is probably the steroids. Instead I am following the narrative for several TV shows including Damages, Lost, ER, 24 and The Wire. I am not sure that I could defend my watching any of these, but for my illness, but at least they pass the time while I'm feeling too unwell to work.
Diane and I have also started a 1000 piece jigsaw puzzle. To do it on, we went out and bought a picnic table with 4 plastic seats attached. The first time we used it a small piece of plastic that was holding it stable snapped and we ended up on our backs (luckily without any of the spars inserted into our anatomy) surrounded by jigsaw pieces. The shop replaced it as faulty and now we are about halfway through the puzzle.