It has been a difficult week. I have been just as slow to recover from the single drug as I was with the two drugs. The only thing that I have escaped is the cold-induced parasthesia. I'm glad I have an extra week to recover this time. The worst thing is the lethargy; after 7 pm I am a zombie. I have been trying to write a piece on TCL1, but some days I write no more than 20 words. I have also been preparing my accounts ready for the taxman, a tedious task at the best of times. However, with the future uncertain I thought it best to get them out of the way during this three week break.
I was asked if I would speak at the UK CLL Forum meeting in September, but the truth is I am so weak I would not even make the journey to London. Perhaps next year...
The postural hypotension has been bad enough for me to drop my usual blood-pressure pills, but even walking from bed to armchair sends my pulse rate up to 120 per minute. I have been doing exercises while lying down to try and strengthen my muscles which have wasted away with all this inactivity.
Course 9 starts on Wednesday week, so keep me in your thoughts and prayers, please.