tag:blogger.com,1999:blog-19490962.post113874469147269023..comments2023-12-10T10:06:41.979+00:00Comments on mutations of mortality: What is the aim of treatment? (part 3)Terry Hamblinhttp://www.blogger.com/profile/06346629921055055879noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-19490962.post-8162839011045020932011-04-05T11:02:07.227+01:002011-04-05T11:02:07.227+01:00I have just found this post, and it is definitely ...I have just found this post, and it is definitely the first time I have read such an honest thing! I am French and likely to be treated this year. I really wish I could avoid it.<br />Thank you for your help.<br /><br />AnneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-71167364763069943312008-10-13T10:40:00.000+01:002008-10-13T10:40:00.000+01:00As a dental surgeon with CLL I have now read this ...As a dental surgeon with CLL I have now read this posting and like many, I suspect, now have a sensible, clear treatment approach clarified in my mind.<BR/><BR/>Bless you for all you do for us.<BR/><BR/>Hugh FlintAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1146071452429419952006-04-26T18:10:00.000+01:002006-04-26T18:10:00.000+01:00WOW, this is so great and very appreciated. I am i...WOW, this is so great and very appreciated. I am in the middle of research for treatment,my heart has always opted out of treatment all together that my body couldn't handle it. I know in my head that it may be a neccassary step eventually but I would like later instead of sooner. I have an oncologist who keeps well saying this,<BR/><BR/>Quote:*** hi; your WBC (lymphs) have climbed more and hemoglobin has dropped (although) still in normal range. As I mentioned to you in the past I would recommend chemo-immunotherapy to try and improve your energy, splen size and blood markers. It is not an emergency and you could watch it for a bit longer but you may feel better with such treatment and if so then you would have sufered through symptoms needlessly.*** <BR/><BR/>And A hemotologist who says wait on treatment but keeps saying I should remove my spleen and eventually opt for a non-alabative stem cell transplantation.<BR/><BR/>NOW who is correct one only knows and this article helps confirm that one should pay attention to what our body says to us and listen. My only comment is you say "unless the bone marrow is threatened I prefer to avoid treatment" now what tests should one ask for to determin this fact. Everytime I ask for a sub70 or CD38 I get the comment it would not maek any difference with regard to my management. <BR/><BR/>So you can see why I am happy there are people such as yourself who are willing to be forward about things. <BR/><BR/>THANK YOU very much for being here.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1139822827816160092006-02-13T09:27:00.000+00:002006-02-13T09:27:00.000+00:00Dear Terry Hamblin you are a breath of fresh air i...Dear Terry Hamblin you are a breath of fresh air in this doctoring business. For me you are a reincarnation of Dr Cameron and Dr Findlay and of course Janet that Irish tap dancer the fastest in New York City. The cast of Dr. Findlay's Casebook.<BR/>I live in California amongst Production Line Doctors. After reading "What is the aim of treatment," I wonder how can we get them to read your treatise on CLL Treatment. I am sure it would be news to many. I will give my local Hem/Onc a copy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1139197198745898052006-02-06T03:39:00.000+00:002006-02-06T03:39:00.000+00:00With a dwindling immune system from both CLL and t...With a dwindling immune system from both CLL and tx. I pray that the Lord returns!<BR/>(It helps to know what eternity holds for me.)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1139153386150150462006-02-05T15:29:00.000+00:002006-02-05T15:29:00.000+00:00I think you have stated what we all hope medicine ...I think you have stated what we all hope medicine to be. Help and care and understanding in a time of need.<BR/><BR/>In CLL I have problems with chemo therapy. History has proven it to be a slipper slope to death with a few years of respite if we are lucky. <BR/><BR/>I think the question facing CLL patients and doctors, is the cure worse than the cancer? Given your objectives to extend life as long as possibly, would a CLL patient be better off never being treated?<BR/><BR/>Has this ever occurred or is some medical intervention inevitable in our medical system?<BR/><BR/>Your viewpoint is certainly admirable.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138813030440996752006-02-01T16:57:00.000+00:002006-02-01T16:57:00.000+00:00Your learned thoughts are very much appreciated by...Your learned thoughts are very much appreciated by CLL patients and their loved ones.<BR/> We appreciate you, Terry!<BR/><BR/>Dick, in FloridaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138767834663923692006-02-01T04:23:00.000+00:002006-02-01T04:23:00.000+00:00Thank you, Dr Hamblin. I have read so much about ...Thank you, Dr Hamblin. I have read so much about CLL that it was getting difficult to see the forest for the trees. Your blog, and especially this most recent article, helps to correct this and put things into perspective. For someone who does not have aggressive CLL this is very important.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138765137329273352006-02-01T03:38:00.000+00:002006-02-01T03:38:00.000+00:00Interesting rhytm and rhyme - could be set to a ra...Interesting rhytm and rhyme - could be set to a rap beat!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138761176471577612006-02-01T02:32:00.000+00:002006-02-01T02:32:00.000+00:00Bleak! I suspect that there are a number of other...Bleak! I suspect that there are a number of other agents that can also provide palliative relief without permanently damaging the bone marrow. <BR/><BR/>Some of these newer agents are presently in clinical trials. Others are in pre-clinical or in animal testing. Others show only effects in the test tube, so far.<BR/><BR/>One such treatment, using existing drugs, is high dose methylprednisolone together with rituximab. Complete remissions have been reported. Many patients following such treatments are doing well and feeling fine, and have not permanently damaged their immune systems. Campath as a 'chaser' after HDMP+rituximab is also being offered to patients.<BR/><BR/>Gossypol (AT-101) and other agents such as green tea (EGCG), and even traditional chinese medicine have had some positive outcomes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138757326712198572006-02-01T01:28:00.000+00:002006-02-01T01:28:00.000+00:00This post needs to be shouted from the rooftops!Th...This post needs to be shouted from the rooftops!<BR/><BR/>Thank you, Terry. If there is one thing that should be required reading for a CLL patient -- and for doctors treating those patients -- it is this post of yours.David Arensonhttps://www.blogger.com/profile/13876562687586184006noreply@blogger.comtag:blogger.com,1999:blog-19490962.post-1138751766803446322006-01-31T23:56:00.000+00:002006-01-31T23:56:00.000+00:00thank you Dr. Hamblin for the most honest thing I ...thank you Dr. Hamblin for the most honest thing I have ever read on CLL and treatment. I hope that everyone reads this. <BR/><BR/>Again bless your heart for being so giving to us on the ACOR list.<BR/><BR/>Elyse BurdenAnonymousnoreply@blogger.com